You are right on the mark. What triggered me was the slide in Sid's presentation: "Assessing Fibroblast Content of Tumor". Peyronie's is all about Fibroblasts. I actually typed my reply quite a few times, deleting mention of Peyronies and retyping it. It's a shameful condition for me, and I realize that I have to get over this. Peyronie's affects 1% to 20% of men, primarily because it's (if you're anything like me) - is impossible to talk about.
replyAgain, you're completely right. Talking about the disease is the first step.
It’s not quite the same, but I had a frenulectomy done due to severe phimosis leading to pain and bleeding. It was absolutely horrible, and I was shocked at how hush hush we all treat conditions like this.
replyThankfully there’s a straightforward surgical treatment for it, and I hope that you’re successful on your quest around Peyronie’s!
This reminded me of my own story, when I was 15 and had phimosis. I was embarrassed to talk about it with anyone, so in my desperation I posted about it on a forum that claimed to help kids in need of help. Someone responded and gave me instructions that they claimed had a high success rate at treating the condition.
replyI followed the instructions for a few months and it fixed it. I went back and sent the biggest thanks to the responder. I did not expect to get any help from a random forum.
I still wonder what's the way to share this kind of knowledge with the new generation in today's internet. There has to be swathes of kids struggling with "embarrassing" (in quotes, because they actually aren't embarrassing at all) issues like this.
I had to google your condition to empathize, but wow - terrible. I'm truly happy for you that you could solve it! Thanks for your best wishes!
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