I mentioned in another comment here that I lived next to a family dealing with a challenging situation. They have my infinite respect for doing their best with a life-altering condition. I saw, and know, how hard it was for them, but they pressed on. Well, same for you and yours. Thanks for doing what you can.

It can be so frustrating to read these takes about stuff like DS or Autism - and so tempting to just respond in anger. I'm glad you took a step back too.

You might consider posting that all as a top-level comment. It's very important context.

So sorry for what you had to go through