This is the right mindset. Securing huge piles of heterogeneous data while giving PhD students the freedom to "play" with it are quite conflicting goals.
replyI like their idea of an audit log of analysis runs -- beyond transparency, I'm sure it'll help future researchers know how much iteration is needed to work with the messiness of medical records...
replyI'm also amused (in a good way) by the fact that SAS isn't supported as an analysis platform...
It's certainly an interesting idea, I remember he was on a few podcasts talking about it. I might submit it here to see if it gets some conversation going
replyI have huge problems with Goldacre's project because that project has never been disclosed to the general public let alone some form of opt-in/opt-out.
replyI think the opt out process is the same as the one that came to prominence in the care.data days. It is not a very good process since it is opt out not opt in, and reliant on motivated people searching for a form.
replyOn the other hand I like opensafely's approach to security: no individual data is ever shared with researchers.