https://www.europe-consommateurs.eu/en/who-we-are/about-us/e...
And file a complaint... As that breaches a dozen or more EU laws. If a lot of people do it in all the countries, it becomes a national issue.
That is the only way you fix things, and yes, we have had multiple successes with companies taking the piss. Even Samsung can not escape as their have officies in the EU and sell products there.
For the folks outside the EU, ... Its a harder fight and you need to look up your local agencies.
This is they same company whose tvs take pictures of what you are watching and send them back to Samsung.
It's definitely not just Samsung. As bad as this is. The problem is bigger than just them.
By all means, let's use a more appropriate term, like "abuse" or "misappropriate". It's not sufficiently condescending for a company that's trying to train AI on people's private health data.
(And "my own URL" realistically includes Google and Dropbox and OneDrive and iCloud, not just nerd stuff. And even without automatic backups it should hold on to everything and give me an export button.)
"pay or consent" stunts have already been ruled illegal under the GDPR. This goes even further than that, where you don't even have the option to pay.
How can you be "condescending" to a company?
The headline as described sounds to me like they're violating GDPR by tying to force "consent" for a not-strictly-necessary-for-functionality use of health data. The European Data Protection Board has repeatedly stated that consent is (generally) not considered to be "freely given" if there is a significant detriment for refusing it or if the user has no genuine choice.
Note however that caveat: as described. There may be some more details which make this not unlawful. Also, actually deleting your data if you don't consent is the kind of thing GDPR requires.