upvote
I have a friend who got a tick bite on holiday in America many years ago. Turns out they got Lyme disease but no doctors in the UK were experienced with it so they dealt with years of misdiagnosis. I really hope any education effort can get out ahead of that.
reply
Yeah. I think we simply did not see it enough and to be honest far too few doctors ask the "have you travelled" question about unusual disease. It is better now, but I think the "could it be?" thought doesn't occur because the incidence has been low.

There is a more severe risk around rabies. We basically do not have it in the UK or Ireland; it has been eliminated for over a century except a tiny incidence of a virus in the same family in bats. But because we have essentially eradicated it, doctors do not often think to ask about it, even in people who have travelled, which led to someone suffering awfully last year.

And since a dog bite or even a fox bite in the UK or Ireland carries literally zero risk of rabies, those who are bitten or scratched while travelling abroad do not have it uppermost in their mind.

reply
Thats interesting, since there is a lot of research around face palsy & recovery in UK.
reply
Yep.

About 20 years ago my gran got to the facial palsy stage of Lyme's before it was even considered and diagnosed by a visiting locum doctor who'd grown up in another country.

Antibiotics were given, her face recovered (albeit slowly).

It's a horrendous disease.

reply
May I ask: Did the muscles on the side of the face with the affection also restore or does she have an muscle-atrophy until today on that side?
reply
deleted
reply
Publicly founded health systems are terrible whe. dealing with Lyme disease. It is impossible to simply and clearly diagnose, and separate ill people from "simulants". Something like "back pain" ormother chronic illnesses.
reply
Nothing really to do with public healthcare. It is literally that there is almost no medical or social experience in the UK of actually seeing developed Lyme disease up close, because it has historically been so unusual, so there are no protocols.

A few thousand cases every year now, when the first indigenous case ever properly recorded in the UK was only in 1986, and it's not like in the USA where really wide areas are high risk. Some of the pockets of highest risk Lyme in the UK are no more than a few miles across.

Nurse stations and pharmacy clinics are great at properly removing ticks if you know you have been bitten, and from there you will now get good advice about Lyme.

But a system that has no endemic experience of Lyme is just not going to test for it. Because it's remote, and people are usually unaware they have been in risk areas, and often unaware they've even been bitten.

reply
1986 is forty years ago. We have Lymes disease in Scotland (I know someone who has it), and a large deer population which has not been properly controlled with substantial remote areas. (Much smaller than the USA but big enough to be reservoirs for the disease.)
reply
> 1986 is forty years ago.

Epidemiologically recent (and also dofm-recent because I'm old).

But the graphs typically show that Scotland ballooned in the last twenty years, from below a hundred a year into the thousands.

Apparently in the UK it is now mostly stable, so it is endemic in deer. Much more common in middle-aged people who are I guess more likely to walk the dog and be keen active gardeners.

reply
One thing pointing out is that deer aren’t really the disease reservoir for Lyme disease (it’s primarily mice) - but deer are key for tick population growth.
reply
Mice and voles, yes.

(There are more voles in the UK than mice, as it goes. Outnumber them by about thirty million or something. Fairly recently acquired trivia for me, but it turns out that if you see a mouse scurrying in the wild in the UK, away from houses, it's a bit more likely to actually be a vole.)

reply
Ticks are much more common in Scotland thanks to deer population and high rainfall. Ticks prefer damp conditions to drought conditions, so this last summer wouldn't have been good for them. The damp makes it easier to survive while they are waiting for passing hosts. They also like long grass and overgrown areas.

England in comparison is much more built up.

We do have Lyme disease here unfortunately. I know someone who has it.

reply
Certainly had to convince my gp a few years ago that indeed there is Lyme in Ireland
reply
It certainly exists in Scotland. Wouldn't surprise me if it got there.
reply
It started around Connecticut in the 70s and has been spreading out radially since then. I believe it’s still not a huge problem in the western United States (there are other tick borne diseases there however). Soon it will spread across the world and tick bites will be serious business everywhere.
reply
Correct. The outbreak was first recognized in 1975 in Old Lyme, Connecticut, directly across the Long Island Sound from the Plum Island Animal Disease Center (a lab which had been doing explicitly offensive biological weapons research until at least 1969), which led to an unverified theory about an escaped bioweapon.

Genetic studies and museum tick specimens prove the bacteria existed in North America for thousands of years before the lab was built. Whether there was gain of function done on it is not publicly verified.

reply
I live near Plum Island. Just look at the Google Map reviews to get an idea of the sentiment. Camp Hero, Plum Island…lotta material for Netflix series coming out of Long Island.
reply
Maybe it is a raise of dog ownership in UK as well. They bring ticks inside houee, and shed it in public parks. Our dog used to have like 50 ticks everytime it returned from run.
reply
People are more aware of ticks because of dog ownership, I think, but I don't know if this is a real risk because of the widespread use of tick repellent treatments for dogs (which are their own little eco-disaster).

COVID lockdowns changed us and we're a bit more outdoorsy.

But mostly it is the deer population. There are now four times as many wild deer in the UK as there were before the first indigenous case of Lyme was detected. From under half a million to well over two million over that timeframe.

In the south east around where I am, wild boar are now a potentially significant vector in the high risk areas, too — we've gone from literally zero to a couple of thousand wild boar in the same forty-year period of time just in the 20 miles around me. They apparently can carry upwards of a hundred without suffering.

reply
[flagged]
reply
Ah, yes, climate change, which also explains how Lyme disease, first diagnosed in the US in the northern midwest and northeast, later spread southward. I'm sure it works in mysterious ways in your neighborhood as well.
reply