i think what's going on here is similar to why celebrities are often curt with people that come up to them. Some celebrities are actual douchebags, but others are not necessarily so but just get so many people coming up to them and saying the same thing to them.

It comes down to two mismatches: first being the famous person's own patience, which is just a normal amount, but instead of usual number of others going up to them now it's 100 or 1000x the number of others.

The second mismatch is the information asymmetry: the famous person him/herself knows that they have gotten 100x people going up to them and saying / asking the same thing, and they know that they will continue getting this for the rest of their life, so they respond with annoyance, which is completely understandable. However, the average person going up to them isn't gonna think that many logical steps and realize this; they're just saying "oh cool, it's a celeb, I never see celebs. Let me try to talk to them!"

As someone with a different chronic ailment I've come around more toward fuck the doctors than the forum posters. The only relief I've ever gotten after seeing literally dozens of doctors over the last 10 years has come from tips from forum posts and more recently LLM chats. Doctors tend to stick with whatever standards their insurance or the FDA has come up with and then just throw up their hands if that doesn't work. You do have to be careful of all the quack influencers and hucksters out there. But in my experience you have to become your own expert, read all the science papers, follow every lead, and force your will around the healthcare bureaucracy. I'm currently importing quality of life altering meds from Indian pharmacies that my doctor refuses to prescribe because it's off label. YMMV.

> because, who the fuck are you? Are you a doctor specializing in my disease? Are you also a sufferer of my disease? Are you a caregiver for someone with my disease? No? Then go away "dude who read something one time".

That’s a bit hostile. I happen to have been following research around beta-carbolines for almost two decades and am curious whether clinical practice follows that research. My replies may be curt simply because I am writing on a mobile device.

It is interesting that you should decide to die on that hill, when the parent poster clearly did not have an issue with my question. It was neither directed at you, nor did it concern your disease.

Are you certain of your own motivations?