I completely hear your point. We have a close neighbour with a kid with a mental disability which causes her to mentally stay forever 6 years old. She is a happy person but we do see the effects on the parents and sibling and how much care and love they spend. They do it willingly and lovingly, but it still takes a toll. Would they choose differently? I don’t know. But as a parent if I had the chance up front to cure/fix/prevent expression of Down syndrome, I would take it.
replyWow, thanks for taking the time to share all this data with such clear points. Much appreciated, especially the personal anecdote to make all this be less academic.
replyI read their comment, flashback to years of growing up, trying to salvage an unsalvageable situation, and my now non-existent family all came rushing in at once. I saw red, almost posted the one sentence putdown version....glad I took a step back and data-fied it. Learned a bit myself, and I really appreciate you said this. Don't have words for why. Cheers.
replyI mentioned in another comment here that I lived next to a family dealing with a challenging situation. They have my infinite respect for doing their best with a life-altering condition. I saw, and know, how hard it was for them, but they pressed on. Well, same for you and yours. Thanks for doing what you can.
replyIt can be so frustrating to read these takes about stuff like DS or Autism - and so tempting to just respond in anger. I'm glad you took a step back too.
replyYou might consider posting that all as a top-level comment. It's very important context.
So sorry for what you had to go through
This is a well written response, thank you.
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